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Pray for Shaylynn Boyd

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Pray for Shaylynn Boyd

Shaylynn was diagnosed with Acute Lymphoblastic Leukemia on 7/6/2023. We believe in the prayers!

12/07/2025

There have been a few people asking if Shaylynn needs anything for like a celebration which she really doesn’t at this time. Shaylynn will have a Make-A-Wish trip in March and we will be going to Hawaii. We have a Venmo set up that goes to her travel account which we have used for medical needs, medical bills, and our trips to Kansas City. If anyone wants to donate to this Venmo we will give her money she can spend out of this account for soveiner or gifts and be able to do excursions while there.

We also have Pray for Shaylynn Boyd shirts available to sell. Money for these shirts also go into that account for travel and etc. if you would like a t-shirt they are $10 but if I need to ship it will be $15. We have lots of adult small, medium, large, x-large, xx-large, and ###-large.

12/06/2025

Today’s fact:

Around 3,500 to 4,000 children and teens are diagnosed with leukemia each year in the U.S., making it the most common childhood cancer, with About 30% of childhood cancers being leukemia, primarily Acute Lymphocytic Leukemia (ALL). Globally, about 58,000 new cases occur annually, with higher rates in younger children and boys.

12/05/2025

Shaylynn has been an amazing fighter through this process and rarely ever complained about set backs or treatmenst needed. I have decided for the next couple days I will make a post daily about facts of childhood leukemia.

Childhood leukemia has a high survival rate, with some forms like standard-risk acute lymphoblastic leukemia (ALL) having a survival rate of around 90–95%. The prognosis depends on several factors, including the specific type of leukemia, the child's age, the initial risk category, and how well the child responds to treatment. Advances in treatment have led to most children being able to live long, healthy lives after treatment.

12/04/2025

12/4/2025 is a day of rejoice. Shaylynn had her last IV chemotherapy, last Lp with intrathecal methotrexate and port removed. The last two years have been the most humbling experiences for josh and I. We have had so many pray for our baby and stop us to tell us her story inspires them. Shaylynn has fought this terrible cancer and won as gets to ring the bell 1/8/2026! Please pray her incision heals perfectly and does not have much pain from incision. Josh and I truly want to thank everyone for support which has helped us get through this journey.

10/30/2025

Another month down. Shaylynn’s counts were ANC 1079, Hgb 11.4 and platelets 216. Since restarting oral chemotherapy last month her nausea has returned and started having constipations issues. Medications adjusted to try to help. Oral chemotherapy doses increased today and we will not be back for 5 weeks due to holiday. On December 4th shaylynn will have her last IV chemotherapy, last LP with intrathecal methotrexate and have her port taken out. Hallelujah! We will be seeing her GI doctor within the next month also for follow up. Getting so close to the end of her journey. Prayers for staying healthy so we can finish this journey strong.

10/04/2025

It’s a beautiful day at the WAGS golf tournament. Heather has become family to us and we enjoy coming each year. This golf tournament sponsored Shaylynn in 2023. It means the world to us to have her here and continue coming each year.

10/02/2025

Prayers have been answered today. Shaylynn’s AnC has rebounded back to 2,010, Hgb 10, platelets 241, and WBC 4.72. Since Shaylynn’s metabolites on chemo were so elevated they will decrease her oral chemotherapy doses and start her on allopurinol to take with chemotherapy so her liver can breakdown and metabolize chemotherapy better. Since stopping all chemo one month ago she has had no nausea or vomiting so we are hoping since restarting with lower dose these symptoms will not return. Prayers she does well restarting medications with no issues.

09/22/2025

Last Wednesday after shaylynn went to ER for fever our NP called and told us she was either afraid her IgG level was low again or Shaylynn might have come out of remission so we were scheduled appt for today in KC. As you could imagine we have been on a roller coaster of emotions. With me and Shaylynn being sick since Wednesday josh has had to pick up the slack. Josh has been the very best nurse for us both. Shaylynn’s labs today showed she is still in remission and her AnC has increased to 630. She is no longer severe neutropenic. Shaylynn’s IgG was also 1230 which is great news. This really shows you how a regular virus or illness takes a toll of chemo patients. When we were last in KC they ran metabolites on Mercaptopurine which Shaylynn’s are way off. Normal value should be less than 5,700 and Shaylynn’s was 47,358 so her little body isn’t metabolizing the chemotherapy like she should be. At this time oral chemos are still on hold until her AnC is greater than 750. They will be figuring out dosing needed of another medication she will need to be taking with her daily chemo so she can metabolize them normally. Please pray she continues to heal and we can restart her medications needed.

09/17/2025

Been a long morning but ended up having to take Shaylynn to ER for fever. Shaylynn’s fever was 100.9 and her sinus symptoms worsened. She has tested positive for rhinovirus and AnC plummeted to 100. Shaylynn received a dose of antibiotic in ER and we were able to come home and isolate. We will speak with her oncologist tomorrow about plan of care but otherwise we will just hang out and recoup. Please pray that she gets well soon. Of course I’m also having same symptoms as Shaylynn so I’m trying to recoup also. Prayers that Josh stays well.

09/04/2025

Another month down but have had some set backs…nothing time won’t help. Shaylynn’s AnC was only 480 so all oral chemotherpay is held and will repeat labs next Wednesday. Hgb 11.0 and playlets were 186 so other labs look good. Shaylynn had LP with intrathecal methotrexate, vincristine and prentaminine.

We came to KC yesterday so Shaylynn could do small bowel x-ray due to her vomiting episodes. LThere's no signs of intestinal malrotation/anatomical problems but the contrast did empty out of her stomach somewhat slowly and there were some signs of what is called "SMA syndrome." SMA syndrome or Superior Mesenteric Artery syndrome happens when two arteries pinch the first part of the small intestines and can make it hard for the stomach to empty. This typically occurs as the result of weight loss and the loss of a fat pad that typically keeps the artery from pressing on the small intestines. It can present with nausea and vomiting and in severe cases can require a temporary feeding tube going from the nose to past the narrowed part of the intestines to help kids gain the weight back. But if we are able to get Shay to regain the weight without the use of a feeding tube and just with eating by mouth, that would be great! Sometimes liquids are better tolerated than solids so using nutritional shakes like Pediasure, Ensure, or Boost can be helpful. Shaylynn did put on a pound or two since seen last week. So at this time we will just be monitoring Shaylynn and hope she continues to put weight on and able to not have anymore nausea or vomiting. If episodes continue we will need to do further testing. Please continue to pray for this girl and hope her body heals and no more sickness.

08/27/2025

Hello everyone. Thought we would jump on here and give everyone a little update over the last week. Shaylynn got to come home from hospital Friday after last week health scare that sent us to ICU Tuesday night. We were told to see GI in KC but when we left hospital the first opening was 10/30. Yesterday morning Shaylynn and I were on our way in to see her pediatrician for post hospital follow up when I decided to call KC again and see if there were closer openings. There was a cancellation that afternoon at 2:20 so we cancelled appt with pediatrician and headed to KC instead. Dr Brianna Shuler was absolutely amazing. Labs were done and Shaylynn is scheduled for a digestive x-ray Wednesday 9/3. Her lipase level has increased which could be signs of pancreatitis (inflammation of pancreas which could cause abdominal pain) but other electrolytes were normal. Shaylynn thankfully does not have abdominal pain. We will do x-ray and if negative then plan would be for scope to do biopsies of stomach and etc. things she wants to keep in consideration are injury to SMA (major artery on backside of stomach) that could have been caused by numerous NG tubes versus cyclic vomiting syndrome. Shaylynn has not had blood in vomiting so first diagnosis is less likely but still possible. Cyclic vomiting syndrome is autoimmune and they find to be more prevalent in chemotheray kids as long term use of chemotherapy is hard on your body. Our hope is to find and answer and treat our girl as safely going forward. Please continue to pray she doesn’t have another episode like last week and gets healthier everyday.

08/08/2025

Another month down. AnC is holding on at 910, hgb 11.1, and platelets 269. We have asked to repeat thyroid levels so still waiting on those results (maybe have question if hypothyroid). If thyroid levels normal then hair loss is likely just from chemotherapy and hopefully comes back. She has little new growth so far so she does not want pictures taken unless moms wins protest! We will make appt to see her pediatrician for the vomiting we have been having on and off as her oncologist does not feel this is due to chemotherapy since we have not started new medications. Pray she adjusts going back to school in the 19th and maybe answers for her stomach issues.

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